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Rare Chromosome Disorder Support Group – Unique

Description

Unique is a charity providing support and information to help anyone, wherever they are in the world, living with a rare chromosome or gene condition, their families and the medical and other professionals working with them. These are lifelong conditions, present at birth, though not usually inherited, often causing learning and physical disabilities. Whilst collectively they affected as many as 1 in 150 people, individually the conditions can be very rare, some with just a handful of cases worldwide. This means information about their effects can be very limited - the conditions can be poorly understood. This means that those affected and their families can be left feeling very isolated, confused and alone. This is where Unique comes in, helping them understand and come to terms with the condition and begin to face the future.

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